Lessons in Love

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“And behold there cometh one of the rulers of the synagogue, Jairus by name; and when he saw Him, he fell at His feet, And besought Him greatly, saying, My little daughter lieth at the point of death: I pray Thee, come and lay Thy hands on her, that she may be healed;…”  Mark 5:22-23

Jairus stands in good company today.  I have met several like him.  Fathers and mothers who would go to the ends of the earth to obtain healing for their little ones.  One family in particular I met on this dark night.  We have forged a friendship over pain.  I wish I had a picture of our girls together.  It is unlike anything I have ever seen.  The very moment they met, they each reached out their hands to one another, and held hands.  I cannot explain it, but somehow they understood one another’s pain.  The mere thought that my 18 month old daughter could understand pain at all, causes a myriad of emotions to well within my heart.  And yet, she does understand, and so does her friend.  They each had permanent marker above their eyes marking the surgical spot.  When they spotted one another they each pointed to that mark above each other’s eyes and began babbling in language unintelligible to me, but they understood one another.

This little girl, this friend of my daughter’s has cancer.  She has been diagnosed with retinoblastoma.  She is fighting for much more than her vision, she is fighting to survive.  Her parents have one income, and they live in Chicago.  They make the trek to Philadelphia monthly for treatments.  This is not covered by insurance.  This is a Jairus, willing to do anything, whatever it takes to beg for his daughter’s healing.  They wear a look of constant weariness, and the depths of their eyes hold fear.

And yet, on our happy day, they were there.  We did not realize we would be there together, it was such a wonderful surprise.  I confessed my fears to them before Lydia’s exam.  They understood.  Not many words are needed between us, when explaining these things.  We each know.  Their baby only 2 mos. younger than Lydia was having her treatments.  The girls were in the recovery room together.  It seemed right to have them there.  They celebrated big with us and our good news.  In the midst of my happiness, my heart hurt for them.  When the girls saw each other, they were both feeling a bit under the weather, and grumpy.  Before we knew it, we saw two little bandaged iv wrapped hands, reaching out, and touching.  They were trying to hold hands again.  Their fingers and bandages intertwining.  I was overcome with emotions.  My daughter knows of pain, but it blesses my heart that she knows how to love so well.  She is my daughter, and she is my teacher.  She teaches me, everyday how beautiful the world is.

We are making progress with the Bartimeaus Project, and hope to have more to report soon, but for now, here is a glimpse of the ones we hope to minister too.  Please continue to pray for us, and pray for our friends.  Pray that God would heal their little girl.  We have living proof that He can.

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About bindmywanderingheart

I am a child of God, wife of Justin for 12 years, and mom of 4 incredible kiddos. Our daughter, Lydia has congenital glaucoma and fibrovascular downgrowth. Join us on our journey as we fight the darkness of Lydia's eyes, and of this world.

One response »

  1. Ditto your words Emily–

    “She is my daughter,
    and she is my teacher.
    She teaches me,
    everyday
    how beautiful the world is.”

    I too continure to learn from my daughter!
    I love you Em,
    Mom

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